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HomeShop at BookSurgeHealth & FitnessDiseasesNervous System (incl. Brain)Monkeys in the Middle: How One Drug Company Kept a Parkinsons Disease Breakthrough Out of Reach |
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We will not forget Aug 31, 2009
We send our thanks and gratitude to Nick Nelson, for ripping off the lid and shining a light into a dark corner, where an atrocity was being perpetrated. Amgen has forgotten; the Parkinson's industry has forgotten, and the "general public" were never told about it, except in small doses of meaningless drivel; but guess who remembers the fate of the 48 Parkinson's volunteers? The People With Parkinson's, that's who. Elephant memory. We will not let the story of the 48 victims of this crime get deleted from history. What was done to them was WRONG, and anyone who does not think so should not be permitted to work with Parkinson's patients. They are in the wrong line of work.
But we are leaving huge quantities of information about this crime on the internet - so the children, grandchildren, and great grand-children of the volunteers will know that what was done was witnessed, that the motives of the volunteers were pure, that their great courage was awe-inspiring, their generosity made us weep, but they were cut down by an enemy they did not expect: the zookeepers. We will not forget.
This book by Nick Nelson is going to be selling for a long time. The number of Parkinson's patients in the USA is going to increase from 1,500,000 to 8,000,000. The anger about this atrocity is not fading away, as the perps expected it too. This story is far from over. What was done was WRONG. Nick Nelson deserves the greatest praise for exposing this horror. And hey, perps, we have not forgotten what you did. This book is going to be around for a long time.
Monkeys in the middle Oct 07, 2008
The book tells the story of GDNF, the miracle drug that cures all symptoms of Parkinson's disease, a dreaded progressive neurological illness. It discusses the pros and cons which made Amgen, the biotech company which holds the patent to the substance, halt phase II trials and refuse to give the drug to the patients who were in the trials despite their begging for it. The patients even sued for the drug, not money mind you, but Amgen squeezed out of it by showing that it had neither a written nor an oral contract with the patients to continue supplying them the drug. My only hope is that Amgen will find it in its heart to sell the rights to another company which is willing to go ahead with the trials and market the drug.
1 of 1 found the following review helpful:
Moving Sep 23, 2008
A powerful book that first moved me to tears, then to my Mac to fire off a letter to my Congressmen. A disconcerting indictment of the pharmaceutical industry in which Nelson proves that Amgen put the bottom line above the betterment of humanity. A great read. I couldn't put it down. This book is not just for people with Parkinson's but for all but the lucky few who won't be forced to rely on prescription drugs to maintain their lives.
5 of 5 found the following review helpful:
Monkeys in the Middle Jul 27, 2008
This is a book that deserves a wide reading audience. It is exceptionally well-written and helps the reader understand why medical breakthroughs for diseases such as Parkinson's Disease often do not reach the patients.
6 of 6 found the following review helpful:
Shocking Jul 21, 2008
Nelson's book, Monkeys in the Middle, offers compelling, heart wrenching insight into how a drug company can rip hope away from so many who suffer from Parkinson's Disease. Working as a physical therapist, I have seen the damage and agony that this disease brings to patients and their families, and it is disgusting to think that a profit could be more important than a cure. Nelson gives readers a first-hand account of the struggle in the daily lives of Parkinson's victims, and how just when many of these victims found promise in a miracle drug, it was put back on the shelves until something more lucrative for the company could be discovered. This book makes you wonder what other discoveries could be on the horizon that drug companies are withholding. I highly recommend this book.
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